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April 17, 2005

Husbands and Wives Living With Multiple Sclerosis

Topics: Health Issues

Here's a research article on work that  investigated the lived experience of spouses of people with MS. This investigation was a first step toward developing more effective interventions for these caregivers. Multiple sclerosis is an unpredictable disease with significant uncertainty regarding symptoms and prognosis. Psychological and emotional issues can be as difficult to deal with as the disease itself.

(...) "People expect to become caregivers for babies, children, and elderly parents. They do not, however, expect to become caregivers for a chronically ill spouse at a time when they are focusing on developing a career, providing for their family, and caring for their children. Thus, spousal caregivers of people with multiple sclerosis (MS) face unique challenges and demands. With its physical, social, and psychosocial effects, this disease permeates all aspects of family life."

(...)  Spouses are expected to provide support while needing support. They, too, experience numerous losses: role and relationship changes, and possible career and financial changes if their wives or husbands had been employed. These stressors can lead to ineffective self-care for the wife or husband; the reciprocal effects of illness can create enduring strain for partners.

Required and helpful reading for MS patients and their spouses.


Posted by Hyscience at April 17, 2005 9:50 PM

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